So, after 24 years, it is starting to get serious for me and my MS journey. I’m going to write about it here so I can keep it all straight in my head, and then I will have a timeline and tangible proof of my MS journey.
We just got called and subsequently scheduled my very first MS-related surgery and it took me a moment and I felt strange but then, I bawled. Twice. I think I need to backtrack and explain how the surgery came to be scheduled. It will be five months of appointments for this one! This is so big now!!! I never expected it to be like this in 1 million years!!! But this is where I am now and it seems my Mom is with me too.
I had an ultrasound on January 17 where I discovered that I have a calculus in my bladder. I didn’t know what that was or didn’t even understand what was happening, but after my April 9 appointment with my new urologist, Dr. K, she explained things to me and wanted me to have a CT scan which I had at 8 o’clock in the morning on May 13. That was a brutal appointment to get to!!!
I had my virtual appointment today (May 23) with Dr. K and she explained that urogram to me what the next steps are. And here it comes:
My Mom sat next to me as I held my phone for my virtual appointment. Dr. K explained she wants to handle this with the most minimally invasive procedure possible. She explained how the surgery would work and that two people to schedule. They called my mom now. She handles all of my appointment making. We did that specifically because depending on the time of day, I may not be with it.
My Mom got names and phone numbers of who was calling before the end of our appointment. Lynda called shortly after and rescheduled the surgery for July 15. It has a long name. And it’s going to take one to two hours.
Then she made a follow up appointment to the surgery for August 13. So I discovered my calculus in January. Had appointments for it in April and May and now I will have them again in July and August.
So this is all new to me and I still have my annual neurology appointment and optometry appointment that are scheduled for later this year (July and August) . I already saw the neural ophthalmologist. We will talk about her findings with my optometrist in July.
I think that I bawled after we made the appointment for the surgery because for my entire life consists of only three surgeries I have a C-section sandwiched between two knee surgeries. But this one is my very first MS related surgery! The only reason I’m having surgery this time is because I have had MS for 24 years! #MSsucks!!! 😒😒😒…