Month: March 2025

Beyond Startling

I originally posted, in jest, that it would take me a whole week to recover from the fiasco of the fire department helping me in the parking lot.

Well, turns out that is true! I had no idea that would happen! The fact that it is, is beyond startling! This morning, well, this afternoon, when I got up; I looked at my Mom coming out of my room after putting laundry on just after I had a awakened and my eyes were wide and then they started to sting. I didn’t trust that sting but I started saying, “This MS – I could really feel the sting, so I just mouthed the words, “Is kicking my butt!”

Because it really is now! I can’t get over the fact that it really IS kicking my butt! That fact makes me a little bit afraid because I saw myself still working and driving and throwing my manual chair in the trunk of my car when I was 65. All of that was not a thing when I was 35.

I never imagined this in 1 million years!!! #MSsucks!!! 😒😒😒…

NOT Recovered

Today is Sunday and I am NOT recovered! I am a bit startled by this fact, and maybe it’s just because I’ve had MS for so long…

This happened Friday:

I was able to fill my winter chapstick container so once this bag-o-chapstick is gone, I have two other tubes of Vanilla Bean and I will just wait for the weather to change. It’s starting to feel weird now!

Befuddled

I am so grateful that I did NOT hear that Alanis Morissette song when the Westland fire department came to my aid:

My Mom said that sirens were not necessary and they listened. I was surprised when I looked to my left and they were getting out of the truck.

My Mom and I talked today and we said that we should always park where the firetruck parked because the lot is big enough. Regardless, if there’s snow, we need to make our own parking spot.

I’m really not ready for this disease progression but it seems to be here now, and I’m quite befuddled by the whole thing!!!

March 2025 Faves

For my birthday, it’s Sara’s turn:

I clearly remember singing along to all of these songs, mostly in our second department! I think I miss my ability to sing MORE than I miss my ability to walk, but slightly less than my ability to see… #MSsucks!!! 😒😒😒…