When my Mom came into my room this morning, she turned the light on, and I said, “This are hard.” This statement comes from a book that we had in our house when I was a child:
I’m not even sure who’s book it was. My Mom agreed immediately, and said, “Every day!” That’s what we say because it is really hard every day now! I seriously cannot wrap my head around the fact that it is so hard now! I actually was able to make my visual field test appointment today for May though. My life it SO SMALL now!!!
It was not easy to wake up today. But it was easier. When my Mom got to my room, Leia followed her. I heard her feet just after my Mom turned the light on. I said, in a monotone voice, “It’s my turn girl, go away.”
My Mom said something about me being mean but I reminded her that this is the MOST traumatic event of my day, getting out of bed, and that I most likely will cry every single day!
I didn’t cry today, but I was on the verge. Most days tears just leak out of my eyes, almost involuntarily I think because I wake up so groggy! I tell my Mom that it’s only going to get worse from here on out. Because it will. That stinks! #MSsucks!!! 😒😒😒…