I have been dealing with my latest significant disease progression since I woke up in pain on October 28. I immediately thought to ‘ask the experts’ and pose the question in one of my MS groups.
When I did not receive an immediate answer, I started racking my brain and it was then that I remembered that Jen, the nurse practitioner gave us wedges while I was being seen at the infectious disease clinic when I had my pressure sores. I remember telling her that I didn’t need them, but she very calmly and knowingly said, “You will.”
I looked through my MyChart and noted that I saw her on July 11, 2022. Well, and October 28, 2023 I needed them. Now I sleep with a sacral off-loader:
My Mom and I call it the ‘ninja turtle’ because that’s what it looks like. When my Mom helps me into bed, she puts a wedge under my right hip. When she gets up with Leia in the morning, she moves the wedge from my right hip to my left.
She will put the wedge under my right hip while I am awake, because that is my twice broken, surgically repaired knee. We have to be careful there! I am asleep when she puts the right side in. I don’t wake up; but when I wake up for the day, my hips do not hurt.
I originally thought that my hips would be made to feel better after seeing Dr. Clark but my nutrition is fine, now waiting to talk to the orthopedist. My appointment is for January 3. I’m really not looking forward to that. It’s in the back of my mind but historically, this time of year is pretty heavy with medical diagnoses…
*Oh, don’t mind my windows because I need new ones and it’s cold outside! 😂😂😂😂😂