I had that appointment with the specialist today. A few days ago, I was a little bit nervous, but then I wasn’t.
I explained to my Mom a few months ago that all of these doctors appointments are nothing more than to get them to sign the ‘permission slips’ that I tell them to sign. I definitely do NOT want to sound or be haughty or anything about this but I have had MS long enough to tell them what I need.
This doctor told me that the last time I was seen in this clinic, was in 2013. I told him what I needed and he put the request in the computer. We had to wait almost 2 hours to see him and I told my Mom that’s about right because I came to this clinic in 2001 (it’s the same specialty but I don’t think it was the same office) and I had to wait two hours then and when that doctor came in, he did not sit in the doctor’s stool, but sat in the chair next to me. I will never forget him looking at me and telling me that, “MS sucks!”
I remember being surprised, first off, that he sat in the chair next to me, and then for him to say that to me. I that was the first time I heard those words from a doctor and I think I may have looked at him almost teary-eyed, and said, “Yeah.” that was way back in 2001, I didn’t even know what to expect back then but I already knew that it started sucking!!!
Now, for the rest of the year, I just have two doctors appointments in September and then I am done with doctors for this year. I think it was in 2022 when I got my pressure sores on my heels that I understood how this is going to work with me having MS for this long and the fact that now I need multiple doctors in different specialties to handle me.
I was telling my Mom today, that two of the last three doctors we saw, told us, “If it ain’t broke, don’t fix it.” I had to call the specialist after getting the referral off MyChart from my internist. I have been handling this for 21 years, but it turns out that probably in mid June that it to be ‘broken’ so that’s why I went to the doctor today. He signed off on everything and now I’m good to go!