Month: May 2023

When Sean was young, probably about 10 because we were living in our house. I used to get dove milk chocolate bites, and we would eat them together and I would read the quote or fortune or whatever you want to call it.

It was then when I decided to get Dove Bunnies for Easter because they discontinued making the Crunch bunny with big feet that I used to get for Sean every year. I would often get Dove milk, chocolate bites for us to eat together. But then my disease began to progress…

I do not do research on the Internet regarding anything having to do with MS because, honestly, that sh*t is way too depressing!!! I do, however, ask questions for my MS support groups to answer. It was there, probably about a decade ago, that I switched over to dark chocolate instead of having milk chocolate. There’s better health benefits for people with MS.

I prefer dark chocolate, so it worked out for me. But now, let’s fast forward to present day and everything has come full circle! Dark chocolate is too difficult for me to bite into! I had to switch back to having milk chocolate, because that is easier to melt in my mouth.

I had a piece of milk chocolate tonight and I saw this and I remember seeing it was Sean when he was young:

The reason I had a piece of chocolate today is because I currently am cutting down my protein intake for my lunch and dinner. My nutritionist said that this would happen and I know what I need to do.

I have figured out in the last couple months that three scoops of protein is too much for me. I was just having two scoops of protein, but I was still feeling faint so my nutritionist increased it. But now, I am starting to gain weight, so I need to adjust that. I will just need to pay attention to my body and then when it’s feeling better, I can increase the protein a little bit.

I cut my hair on May 17. I had originally cut my hair to a reverse Bob on my 26th birthday. But now, 15 years and some change later, that has proved to be too long for me. Christina asked me if I was ready and I told her that my hair is the consistency of straw now and I need it shorter and added that she should just make it look good.

When she was finished, waxing my eyebrows, she gingerly asked, how is it going? I replied by saying,“I’m hanging, but it’s progressing!” She give me a side hug. And when I told her that I am not ready for a pixie yet, she said she is not ready to GIVE me a pixie yet! My Mom snapped these pictures right outside of the salon and it was windy. She said that my hair looks like a bubble now:

I was recovered enough to have my Mom wash my hair last night, and my Mom took this picture. It’s more comfortable for sure. It’s strange that I don’t have to put hair behind my ears!

My Mom took Leia to the vet this morning while I slept. My Mom picked up her second dose of her therapy a while ago, but she has been scratching like crazy!

So, my Mom took her in and she saw a different vet and that that looked through her file and told my Mom that she has done everything for the Leaia and nothing seems to be working!

They had a frank conversation regarding it Leia. The vet talked about having a good quality of life. For that, she said that Lealu should be on a maintenance dose of steroids for the rest of her life.

they did a number of scrapings on her to check on her skin, and they drew blood to check for heartworm:

They told my mom to take the Band-Aid off after 10 minutes.

When I woke up this morning, or more like this afternoon, my Mom told me that the woman who fits me from my wheelchair called. She also told me the two available dates possible. I had the choice between June 1 and June 8. I told my Mom June 8 and she said that was good because that was the date she reserved!

I had been emailing with Diane ever since my last ‘go time’ where I received the wheelchair prescription from my doctor. I told my Mom that she would be calling her because my sleep schedule is totally messed up and she is the better person to reach to get an answer from.

Now, my entire year 2023 is planned. I think that this day has been coming since October 2021. In October 2021, I had my swallow test. That began the ball rolling for all of my doctors visits. In April 2022, that’s when I got my pressure sores on my feet. They lasted until November 2022.

I was still seeing doctors and renting vans during the time that I had my pressure sores and when the wound care nurse was coming to my house. I was able to plan my entire 2022 year of seeing doctors pretty early on. Now that it is May 22, I am all set!

I began recognizing that my life is very small probably in March 2023, now that it is May 21, 2023. That I have accepted this as fact. Actually, I think it started in March 2020 that’s when the pandemic hit and I realized that my life did not change all that much.

My life is small, but I’m good at it. I am a scheduler, and I can figure out all of my necessary appointments and can schedule van rentals accordingly. I never thought that my life would be as small as it is, but I can handle this I have finally accepted it.

I didn’t put my contacts in today either, it looks like it will be a “Recovery Weekend.” I can gather myself until June 21.