Month: April 2023

Healthier Than You Think…

I had an appointment today with my naturopath whom I have not seen in eight years but I have been ordering supplements from them for those eight years. I just have had MS for 22 and I think I needed to adjust my supplements a little bit.
It is extremely difficult anytime that I leave my house. I have to go to my doctors appointments and get haircuts and those are the only reasons that I leave my house now.

It is extremely difficult anytime that I leave my house but I HAVE TO go to my doctors appointments and get haircuts and those are the only reasons that I leave my house now.

I have a hard time embracing that! But, I am a scheduler and I have been doing that since 2021. I have my entire 2023 year planned and it’s for haircuts and a doctor’s appointments. I told my Mom that this is the way we have to do it because I still have to be a part of the world!

I was nervous about this appointment because I hadn’t been there for so long and I was in a manual chair the last time I was there. My Mom has told me that I have a good handle on my chosen care for my disease. It definitely is not easy! I am just now realizing that and it sucks!

Just before we left for Dr. Clark’s office, my name Mom noticed that I was nervous and she told me that it is going to be fine and that I should not be surprised if I am healthier than I think.

My Mom was correct. Of course! He did not add much to my regiment of supplements but he added helpful things for me. I see him again in May. I still have to gear up for my haircut on April 19. I am happy that I don’t have to leave my house until then.

“Don’t You Forget about Me”

i sawmy naturopath in person today. I have just been ordering supplements for the past eight years! It was a good check up!

Dr. Clark told me that I look the same and he said that I am doing very good with my health! He added two supplements one as needed and I left there very relieved!

Don’t get me wrong that I am extremely exhausted because I am! When we left Dr. Clark’s office, I told my Mom that I think I am going to cry when we get to my house. I am so tired but the tears are not coming! Maybe March was a one off? I still need to write about that as well.

On the way home from Dr. Clark’s office, I saw a tweet but when I clicked on it it had been deleted. The tweet caught my eye because it was from the NFL net work and I just saw the words “Matthew Stafford” 😍😍😍😍😍

Now, I just catch clips on Twitter because I can no longer wake up early enough to watch GMFB. That saddens me but Kay and Nate are gone so that saddens me as well!!!

This was one of my Facebook memories and it got me thinking about pitch perfect because of what Peter said at the end of his segment. I thought to watch the movie but I am tired and I don’t think my eyes can handle that so I will just post a clip of the song!:

But Seriously?!

Today is Easter and we watched Ben Hur with Sean yesterday and my mom and I watched Steel Magnolias today. I have checked off all of my Easter season movies but this Easter doesn’t feel good.

I am reminded of one Easter, I think Sean may have been seven or eight years old but we had to have the kids wear their winter coats outside for their Easter egg hunt! Sean and I have been talking about how much fun it was when my nieces and nephews and Sean had Easter egg hunts.

This Easter, I finished my vanilla bean chapstick yesterday so I started using the pomegranate one today:


It may be Easter today and I have switched over to my spring Chapstick but I am still wearing my winter hat indoors and if the kids had an Easter egg hunt today, they will not be wearing their coats but seriously?!:

I know that I have been having a difficult time maintaining my body temperature but seriously?!

Holy Thursday

I watched Holy Thursday mass with Fr. Mike Schmitz because I am part of the virtual front pew. My 41st Lent has been a good one. There is a completed puzzle with this picture on it on top of my refrigerator probably full of dust. I don’t know that I will ever do anything with it:

My CousinT

I am having an extremely difficult time dealing with all of my disease progression and I am completely at a loss!!! I was just explaining to my Mom today that everything that is happening to me is completely new and frankly, it’s a little scary!!!

i’ve told my Mom that I am completely startled that my internal clock has shifted. Sometimes I fall asleep five minutes after I would have been waking up if I was STILL working. That means I don’t fall asleep until 4:35.

That’s sad and completely freaks me out! I cannot believe that I actually used to do that! And I did that for the entire time I was living at our current house. Thanking about it now, I can no longer force myself to do anything! I have been operating for the past 41 years that if I just ‘grab my guts ‘and ‘suck it up,’ I’ll get it done. And it’s so shocking to me that I can’t.

There have been too many ‘can’ts’ for me to count in the past 22 years but one ‘can’t’ that was hard for me and my cousinT called me to ask about it was my lack of ability to sing. Yep, that ability he has been gone for a number of years and that hurts my soul!!!

My Mom is laying down so I started watching YouTube videos and I joyfully fell down this rabbit hole of videos and I know that my cousin reads my blog sometimes so I am going to tag her in this post for whenever she reads this!:

My cousinT, Shannon, has introduced me to the musicals RENT, and Wicked by just listening to the soundtrack in her car! We would sing all of the time when I was in high school! I really miss that but it was so much fun!!!

Two Days in a Row!!!

I have figured out that one my soul is hurting, I listen to my U2 playlist. Bono’s voice calms me. I was going to post this song yesterday because it really resonated with me! I am playing solitaire and listening to U2 and I have heard this song two days in a row and both times, it completely spoke to me!!! #SimplePleasures:

ANOTHER Executive Decision

It has been cold so I had no qualms starting a new vanilla bean Chapstick. But I discovered this yesterday:

I am still rocking my winter hats but I made another executive decision to start my pomegranate one once this one is done because at least the weather is in the 50s now?!

It looks like the worlds barometer is broken just like mine! But, the pomegranate chapstick was my introduction two Burt’s Bees flavors. I think when I start using it, it will remind me of Barwis.