My feet woke me up this morning at 6:01 am. I took a pain pill at 6:07 in the morning and tried to fall back to sleep while listening to the rosary. After listening to 2 rosaries, I realized that sleep is not an option anymore. At 8:29 am, I am going to write about what I have been wanting to write about since last Wednesday!!!
I can’t believe that I thought it would be a seamless transition when my power chair that I have been using for four years and one month would be seamless?! But it was and is NOT!!!
I thought it would be a gradual acceptance of my new chair but it is not and will not be!!! I am not due for a new wheelchair until next July but the pad I was using was sufficiently compressed and it hurt!!! That was a problem because I spend most of my waking hours sitting in my wheelchair!!!
I remember when my wheelchair tech, Brad, came to adjust my chair last summer. He told me that my chair is archaic! But I think that it is wonderful! At least, it was wonderful, when the seat was not super compressed and painful. I’m actually good at controlling it!
Last Wednesday, I sat in my manual chair for five hours while my power chair was being refurbished. So, I thought Wednesday would be difficult anyway because I was sitting in my manual chair for so long! And it was comfortable when I switched over to that seat! But then…
When I first got my power chair, Dave, told me that my chair will not move unless the light on the upper left-hand corner is green. As I was tilting to my chair upright so I could sit normally, the chair cushion began to slide!!!
I thought that I would get used to it but it is completely unnerving to slide whenever you transfer from wheelchair or whenever you need to move so the light needs to be green. I didn’t really realize exactly how big of a problem it was until the weekend so I spent last weekend totally uncomfortable! I think it was Saturday night that I told my Mom that sitting in my refurbished chair would be like what I imagine (because I would never do this because that is gross) wearing someone else’s underwear feels like!!!
My Mom called to there yesterday and was told that the seat cushion must have been coded wrong for me to receive the wrong one. I don’t know how long this will take to be rectified because it took six months to get the parts for my current refurbishment!
I am going to get out of bed soon and I am not looking forward to going back to being uncomfortable but that is how it will be until this seat gets replaced! #MSsucks!!!