Month: August 2022

The FI-AS-CO Continues!!!

I woke up this morning to pain in my feet and I set up in my bed by adjusting it and I grabbed my phone off of the charging pad to see what time it was. Once I took it off of the pad, and remained black!!!

I had no idea what time it was but I knew that my feet were hurting. I took my pill with my water and took an Atkins snack because the Lorna Doones have proved to be too many carbs for me!

We spent the morning on the phone! It is a complete mess and I can’t remember my Apple ID password?! That’s because I had to change it six days ago when I got my new phone but now that it is dead, I can’t access it! It’s absolutely horrible!

So, I am using my moms phone as she is resting because she spent all morning trying to figure it out because I was so upset that I can’t even speak. That’s a new thing happening now and it kind of stinks!!!

Uncomfortable

My feet woke me up this morning at 6:01 am. I took a pain pill at 6:07 in the morning and tried to fall back to sleep while listening to the rosary. After listening to 2 rosaries, I realized that sleep is not an option anymore. At 8:29 am, I am going to write about what I have been wanting to write about since last Wednesday!!!

I can’t believe that I thought it would be a seamless transition when my power chair that I have been using for four years and one month would be seamless?! But it was and is NOT!!!

I thought it would be a gradual acceptance of my new chair but it is not and will not be!!! I am not due for a new wheelchair until next July but the pad I was using was sufficiently compressed and it hurt!!! That was a problem because I spend most of my waking hours sitting in my wheelchair!!!

I remember when my wheelchair tech, Brad, came to adjust my chair last summer. He told me that my chair is archaic! But I think that it is wonderful! At least, it was wonderful, when the seat was not super compressed and painful. I’m actually good at controlling it!

Last Wednesday, I sat in my manual chair for five hours while my power chair was being refurbished. So, I thought Wednesday would be difficult anyway because I was sitting in my manual chair for so long! And it was comfortable when I switched over to that seat! But then…

When I first got my power chair, Dave, told me that my chair will not move unless the light on the upper left-hand corner is green. As I was tilting to my chair upright so I could sit normally, the chair cushion began to slide!!!

I thought that I would get used to it but it is completely unnerving to slide whenever you transfer from wheelchair or whenever you need to move so the light needs to be green. I didn’t really realize exactly how big of a problem it was until the weekend so I spent last weekend totally uncomfortable! I think it was Saturday night that I told my Mom that sitting in my refurbished chair would be like what I imagine (because I would never do this because that is gross) wearing someone else’s underwear feels like!!!

My Mom called to there yesterday and was told that the seat cushion must have been coded wrong for me to receive the wrong one. I don’t know how long this will take to be rectified because it took six months to get the parts for my current refurbishment!

I am going to get out of bed soon and I am not looking forward to going back to being uncomfortable but that is how it will be until this seat gets replaced! #MSsucks!!!

Not Possible

I greatly dislike opening my eyes to hear rain falling on my roof and my air conditioner. That’s what I heard this morning and I felt it as well! This rain is continuing and it feels awful in my body! I wanted to write about my refurbished chair but maybe tomorrow it won’t be raining because with this rain, that’s just not possible.

Spicy OR “There it Is!”

I have never liked or had any affinity to spicy food. When I was in high school, I used to get the question because I am Mexican, I should like spicy food! I don’t. I figured out how to remedy that when people would ask me about not liking spicy food. I would just look at them and say, “I am Mexican. I’m spicy enough!“

I’ve said that to Sean as well! I remember years ago, when Sean was still in high school, my nephew was coming to pick him up. I asked Sean to pick me up some dinner because they were going to be out for the evening so I wanted him to drop it off at the house before he left. Sean asked me what I wanted and I told him my Taco Bell order. This was back when I could still chew!

Sean told me to give him my order so Nathan can pick it up before he comes to our house. I told him, I want to Mexican pizzas with no sauce. So, Nathan came over with my Taco Bell order in his hand. He handed me the bag as Sean came out of his room. He looked at me and said, “Aunt Jenny, how can you have a Mexican pizza without the sauce?!”

Sean had just walked out of his room and he said, ”Ew, mom!” I laughed at both of them and I told them that the sauce at Taco Bell is “White people food.” And then we all laughed and they said that I have to have the sauce with the pizza. I looked at them and said, “You two are white, and I am not!

Wednesday when Sean was here when my chair was getting refurbished (I am still trying to gather my thoughts regarding that refurbishment!) he told me a story about someone saying to him that he looks like a white guy but they thought he was ‘spicy white’ which made Sean laugh. He responded, “I’m half Mexican” To which they replied,”There it is!”

That story made me laugh and it’s funny that I would say that I am spicy enough because I am Mexican and now Sean is also spicy but he is a ‘spicy white guy.’

Time to Pillage

It’s Saturday. I drank both of my shakes for my breakfast and lunch and so now it’s time to Pillage!!!:


This comic reminds me of the comics I would read when I was a kid. My Dad would discard the comics and the sale papers every week and I would read the comics on Sunday and I would go shopping with the sale papers and then put the papers in the recycle bin at the base of the stairs in the basement when I was finished.

Just Another Day

My Mom got me out of my bed kind of early today because I did not sleep very well last night. I am sitting in my chair drinking my shake and taking my vitamins. I checked my phone to see what day it was and when I saw that it is August 26. I paused! My heart stopped.

Ttoday was the day that I was hired for my only “Big Girl” job in 2005. My only teaching position. I taught for 12 years until MS decided that I can no longer do it.

I remember that my school leader used to write on an index card because we had to fill out paperwork and our date of hire was a question that we were asked every single year and I remember getting those index cards with his writing on it.

I was thinking about that today and I had to pause my prayers and my water drinking to jot this post because I didn’t wanna forget it. That’s happening a lot now these days…:

this song reminds me of summertime when I was in middle school. My friend’s babysitter really liked Jon Secada so we listened to him a lot!

Grounding

So, after some hesitation, I have a new phone and I also have a new chair (at least that’s what it feels like). I thought that everything was transferred over to my new phone but I have lost some of my subscriptions on YouTube so I am blindly scrolling through YouTube to find something to watch. But then I received the grounding I needed:

I was at WMU when this song came out. I think that I needed to be reminded of a simpler time because this is proving to be so real!!! At least somewhere in there, my phone still knows me!!!

The SAME Damn Phone?!!!!

So, my Mom had to take both of my phones back to the Verizon store today. With my old phone, I could text and get on the Internet. My new phone had all of my updated contacts. I had her snap this picture today before she took the old phone in with the new phone. With all of the two day fiasco to get it activated, it’s the SAME damn phone!:


The one on the left is my new phone and the one on the right, which I was not even finished paying for, is on the left. The only way I can tell them apart is because I have Super Bowl T-shirt stickers from the Super Bowl this past year. Matty won!!! The one on the left is a 12 and the one on the right is an 11 that I was not finished paying for! I had to pay it off before I got the new one!!! Grrr!!!

FI-AS-CO!!!

Absolute insanity!!! Last month, my Mom’s phone got messed up and she needed a new phone. Sharing a phone while her phone came was a little bit trying! I hooked her up with the new phone! I have no problem with that at all! I got her her cell phone back when Sean was born when she was his nanny because I needed to get a hold of her at all times. We’ve just kept it that way! No problem!

But, last week, my phone died. Given how important my phone is to me now with being chronically ill, I had to figure that out as well. I am on a fixed income and you can’t bleed a turnip! So, I ordered my phone on Monday and it arrived on Wednesday and my Mom who had rented a van to take my power chair to be refurbished, made the appointment to get the screen protector put on and to get the phone activated for later yesterday.

I She was with the manager for an hour and 15 minutes and they still could not get it. He could not load a Sim card into the phone! He tried three times before my Mom told him that she will come the next morning.

That’s what she did this morning so now I have a working phone! It was a two day fiasco for sure with some colorful people at the Verizon store as she waited this morning!!!

I’m Still Blinking!

Well, 21 years of MS ain’t no joke! It’s really hitting me with all it has right now and my head is reeling a bit. I watched a movie with my Mom not too long ago that I had seen 1 million times in my childhood and it’s resonating with me now:

It will take me a moment but I will ‘grab my guts’ and deal with it as I have for the past 20 years but you’re 21 is giving me a run for my money!!!