This afternoon, my Mom tended to my left foot because last night she tended to my right foot because the bandage got a little bit loose. Sonya It’s coming on Friday to change them again. Today, as she was changing my bandage and washing my left foot. She told me, regarding my feet, that all of this is exhausting and I completely agreed with her!!!
But, there is another thing going on as well! This year has finally become a problem. When I worked, I washed my hair every day with the exception of the week that we had to stay in a hotel because our power was out for like eight days. It was then when I realized how I’ll-accommodating places are! We had to change hotels on a Wednesday or some thing and so I was unable to wash my hair Thursday morning. I remember sitting in the teachers lounge eating lunch and Mr. Cooper asked me how it is going without power. I looked at him and pointed to my head and said, “This hair, is NOT clean!” I remember that he laughed but it really bothered me because I ALWAYS have a clean scalp!
But now, I no longer work and I am pretty much homebound. 21 years of MS has been difficult but now I have to make concessions. It is so exhausting just existing. With that being said, this is how it is now:
I have figured it out that I wash my hair ONLY when I am leaving the house! I NEVER thought that washing my hair would be as difficult as it is and I NEVER thought I would be okay with NOT washing it! Sonya is coming on Friday so I will wash my hair Thursday night. For now, it’s #DirtyHairDontCare but I secretly care but can do nothing about it because MS is just awful!!!