I have written that I have been dealing with a lot because I definitely have! I am trying to process all of the most recent developments and it’s difficult. I was thinking about Holy Saturday. That was the first morning after I slept for the first night in my new bed.
I remember that as soon as I got into it, my Mom and I realized that it was too low for her to transfer me back to my chair after being in my bed all night. The mattress will compress and I’m lower than my wheelchair so she can’t lift me up to put me into my wheelchair.
She called Sean to get me out of bed when I woke up. I don’t wake up till after noon now. So, he came over and came into my room and sat in my wheelchair as my Mom readied me to transfer out of my bed. I have to be perpendicular in the bed.
Sean and I just were having small talk when I was ready to exit my bed. I sleep all night with the, ‘Zero Gravity’ mode on. That is the most beneficial sleep for my body. My Mom told me that she was ready for Sean to lift me out of bed and I took my bed out of ‘Zero Gravity’ mode.
It was in that moment where Sean saw my face change. He has told me it went from, ”Comfort” to, “Discomfort.” And that statement could NOT be MORE true! That’s how it is for me now. My pain level has increased so much that I’m really at a loss for what to do!