Month: October 2015

I worked with Mike on the black table on Wednesday.  I told him about waking up Tuesday morning in so much pain and that I have been stronger when I transfer as of late.  Before transferring from my chair to the table, I wanted to show Mike.  I placed my hands on the arms of my wheelchair with my elbows up and stood up.  It was straight up and it felt good!  He took a step closer to me and I let go of my chair.  He was impressed but then when it was time to move my feet to sit on the table, I smiled, shook my head, and told him that I didn’t know what to do.  He laughed and put me on the table.  He stretched my legs out and explained PNFs to me in more specific detail.

We didn’t return to the shuttle but instead stood up from the edge of the table.  We did this a couple of times on the black table but it proved to be difficult because I was too short.  My legs are short.  Mike set my feet but I was not able to extend my legs properly because they weren’t bent enough.  Mike compared the black table’s height with the blue table’s height and decided that we would move to the blue table to continue stands because it was lower.  After I was seated on the blue table, Mike began this extensive demonstration of the muscles I need o activate as he bent his knees and simulated sitting and standing.  The demonstration was valuable and I understood it and nodded.  As he sat on a stool in front of me, he added, “But it WILL difficult because you can’t balance on a pole, with feet like these, that is what it is like.”

It took a minute for me to process this statement; and just as I realized what he meant, he started to laugh.  I told him that my feet have been this size for the past 10 years.  He continued to laugh and told me that he noticed that when he set my feet at the black table.    We stood a few more times at the blue table because I felt I “had more room to stand.”  Nick helped us for my last stand by putting his foot in front of my left foot and he had my left hand as Mike had my right.  I was tired and Megan had left but it WAS “Wacky Sock Wednesday” #34 (Sean’s football number).  So I had Mike snap this picture:

I worked with Sue on Monday.  My legs were extremely tight!  We used that tightness to our advantage.  It was easier to stand up with my legs already so stiff.  Sue first had to convince ,my feet to move closer to my chair so I could stand up.  Easier said than done.  After some time, my legs relaxed just a bit so she was able to help me stand and transfer to the black table.  He did some PNFs and they were really strong!  I told her about working with Nick on Friday and being on the shuttle.

She looked over and decided that we were going to do that.  We got help (I think it was Mike) and she situated me on it.  I started with 500 bands (really none) and I did a set of 20.  She liked that I was getting momentum and that my legs were firing so we didn’t stop to rest.  After about 40, she put 750 bands (or 1) on and I continued to push myself up.  It was a whole lot different because it was 250 more bands!  Or 1. My time ran out and I tired out so we didn’t do 20 with the 750 bands  but I think we got pretty close!  Deeds helped to put me back in my chair.

I’ve been laying on my stomach before I fall asleep these days.  I tell everyone how Mike Rhoades suggested it and they all agree that it is a good idea.  After I turned onto my side, I immediately fell into a DEEP sleep.   I was awakened at two o’clock in the morning in a WHOLE LOT of pain!!!  My quads BURNED!!!  It was a pin I hadn’t experienced in a LONG while to THAT extent!!!  It hurt so good and that made me smile even though I was unable to really fall back to sleep but I’ll take it.

Friday was my first time working with Nick Lucius at Barwis.  I worked with him before at ATI but not at Barwis.  Jake was shadowing him.  Jake is a new hire and he is in training.  Nick helped me onto a black table and we started PNFs.  Nick also encouraged me by telling me it was, “good,” or “perfect,” or “Attagirl!”  These accolades always make me feel good!  They wee strong and that felt good too.  I rolled onto my stomach and Nick left to do something.  Jake was sitting on the other black table next to me and I turned to him and asked where we was educated.  He told me that he went to Western Michigan Univ- I cut him off and exclaimed, “You’re a Bronco?!” I smiled and told him that I’m a quarter Bronco.  Then I corrected myself because I am actually 20% Bronco (it took me 5 years because I had Sean in the middle of getting my bachelor’s degree). We did PNFs on the table and then Nick had me sit on the edge of the table and he sat on a stool across from me.

He had me put my hands on his shoulders and attempt to stand.  He braced my knees and on the second attempt, he had Jake brace my hips from behind.  It wasn’t a very good attempt.  I was having a lot of difficulty straightening my legs.  It frustrates me that my body doesn’t listen to my brain especially in something so small as standing up.  But at least I attempted with two strong men assisting me in that attempt.  Then Nick looked over to a part of the gym I had never been and told me that we were going to go over to the shuttle.  He pushed me over to it and he and Jake lifted me and laid me onto it.  I was laying on a slight incline with my knees up and my feet against a board  I had been on this years ago at physical therapy so I understood what I was expected to do.  Pressure bands were placed on the opposite side of where my feet were for resistance.  Nick told me to push my feet against the board and use my quads to straighten my legs out.

At physical therapy, about 10 years ago, it was A LOT easier.  I asked Nick how any bands were on the machine because it felt like 500.  He told me there were none.  I completed a set of 12 reps and then I rested.  He fiddled with the bands but I couldn’t see what he was doing.  Yep.  Just what I thought.  As I tried to straighten my legs, he put 750 bands on.  Or it was 1 but it FELT like 750.  I completed a set of 12, rested, and did a final set of 12 with only 500 bands.  Or none.  I was tired but they put me back in my chair and we ended with straight leg pull downs on the air machine by the roll down door.  I did 2 sets on each leg with 5.5 pounds of resistance.  I was spent but I liked working with Nick and it was nice to meet the Bronco, Jake.  He’s really tall.

Because I tore my hamstring, I had to be taken off the schedule at Barwis while I was at ATI.  There are some holes as I wait to get back on the M-W-F schedule so I didn’t go on Wednesday.  Bummer!  I didn’t know what to do with myself, especially on a “Wacky Sock Wednesday!”

I worked with Sue on Monday.  My legs were extremely stiff and it was evident as I laid on the table.  As Sue worked on me, after some difficulty, she told me that I just have to relax.  I thought of Aaron Rogers in the beginning of the 2014 season and smiled.  After she told me this, I consciously tried to relax and after a while, my legs FINALLY began to relax a little bit and that felt good.  I think it’s unfortunate that this relaxed feeling doesn’t stay with me or my legs.  My body reacts to the slightest weather change and I look at this reaction as the price of having MS for almost 15 years… That STINKS! but it could always be worse.

With my legs FINALLY relaxing, I began to have a good showing with my PNFs.  As Sue would change the stretch, she would tell me to push and when I did, she would say, “Awesome!”  I would hold my push until she told me to relax.  She continued telling me to push and then to relax.  It made me feel good hearing her tell me that my pushes were, “Awesome!”  It’s nice that EVERYONE encourages me.  At Barwis, they ALL believe in me and that I AM going to walk.  No one can tell me when that day is, but they are confident that that day will come.

After PNFs, I was tired.  Sue had me sit on the edge of the table and she stretched out my back.  She has me lean over as she is holds me up with her hip.  She has me lean way far over so it’s like I melt.  My arms hang limp and she rubs her hand down my spine and I melt even further.  We did this three times and I was SPENT!  As I drove home, my whole body felt relaxed and that felt awesome.  If only that feeling could stay all the time!

I got to Barwis SO late that Elle just moved my time back to 7.  Friday night was stressful so much so that my neck had an excruciating pain on the left side!  I sat in my chair and talked with Mike before we started, Mike Rhoades came in for a meeting with Dan.  Mike Morfitt helped me onto the table and he stretched my legs out and it was only when I laid on my stomach that my legs slowly began to relax so I could lay flat on my stomach.  As Mike stretched my legs back, Mike Rhoades came over after his meeting and squatted down and talked with me.  We did our PNFs and then I turned over onto my back.  Mike left to get something and I put my hand out to Mike Rhoades and asked, “Crab hands?”  Mike smiled and he laughed and he gave me his fingers and we laughed as he helped me sit up.

Mike came back with a wooden, weighted, padded pole.  He rested it on the table and sat on a stool across from me.  He told me that we were going to do hypers.  I smiled because I knew what they were because I used o do them with Adam.  We did these for a little while and then he got on the table behind me and pulled my shoulders back as it was my job to tighten my abs and sit upright as long as I could.  My abs began to burn but what did I expect for A.R.#2?  We did some crunches and then Mike brought the pole over.  I was going to bench press on the blue table.  I laid back and began.  I told Mike it was like I was at the combine and I was the one with short arms.  The pole weighed 18 lbs. and proved to be to easy.  Mike put the pole aside and told me, “I see you” and brought over 2 10 lb. free weights.   This still felt easy so he told me that he sees me again and brought over 2 15lb. free weights.  Now, these proved to be difficult and Mike had to help out A LOT in spotting me.

We ended with me pulling myself up holding onto the wooden pole as Mike stood over me.  My sides and back along the sides ached and that persisted on Saturday.  I think it was a good A.R. #2.  My sides felt it on my way home.  It was really nice to see Michael and I wonder how I’d do with the ropes now?  Wait… Let me slow my roll and NOT get cocky because the ropes were BY FAR extremely difficult!

For the first time in over two years, I worked itch Megan!  I was excited to do this and first thing was first and I had her snap a picture of our socks for “Wacky Sock Wednesday” #33:

She had sweaters on her socks and it just had started to get chilly.  She told me it was “sweater weather” now. Having never had worked with Megan, I didn’t know what to expect.  She helped me onto the black tauble and Mike came by and I told him that I felt that standing was on the horizon.  We did the normal PNFs while I laid on my back and while I laid on my stomach. The PNFs I did while on my stomach were completed in quick succession and that made me feel REALLY good!!!

After I rolled over onto my back, Megan asked me if I was ready to stand.  I was shocked and couldn’t quite register what she was saying.  She pulled my ankles so my butt was close to the edge.  I sat up and kind of looked at her in disbelief.  She told me how we were going to do this and told me which muscles to fire.  I “stood” with Megan’s arms around me three times. First for 10 seconds, then 15 seconds, and again for 15 seconds (even though Megan counted faster for the last time).  It felt good even though it looked kind of pitiful.  I guess the horizon was closer than I thought…

I worked with Sue on Monday.   We worked on the black table.  She helped me onto it and it was evident to me that I’ve been feeling stronger.  It showed in my performance.  We did my usual PNFs and with my strength, Sue encouraged me by repeatedly saying, “Good… Keep going.”  That encouragement enabled me to hold on and finish my effort until she told me to stop.

She asked me about the photo shoot the previous week and we talked about that for a while.  For each PNF we did, she continued to encourage me and my leg muscles continued to react to her encouragement and listen to my brain and continued to move until she told me to stop.  Even though I am NOT walking yet, it feels good that I KNOW I am making progress.  I recently read this tweet and took it to heart:

I know that I need to remind myself that slow progress is STILL progress.  I’m impatient and I get frustrated but I KNOW that I’m progressing.  Sue thinks it’s good and she tells me to keep going and I will.  I am.