I thrive on routines and schedules. I have figured out my monthly vitamin and supplement usage. It all falls nicely into a routine. When I get paid, I order my vitamins and supplements.
But having two five week months in a row does not fit into that routine nicely. So, this week, I conducted a rationed pillage because I won’t be able to order more vitamins until Wednesday when I get paid. But the next time I pillage, all will be right in the world!
Sean said something to me a few days ago that really impacted me! He was just sharing one of his core memories from our second apartment with me. When he told that to me, I kind of felt a sense of pride and like, ”I did that!” But then it got me thinking that I should chronicle these things before I forget because what he told me a few days ago, I kind of forgot until you told me. I have been pretty forgetful these days but he’s been startling me lately!
The first time I was startled was probably in the late fall of 2018. He was still in high school. I had just had him bring the Christmas decorations up from the basement. We were passing each other in the small hallway and he casually told me that it was a good move to collect the ornaments every year like I did!
I think I was just making my way into the laundry room when I stopped because that statement completely astounded me! I told him that I knew what I was doing but I didn’t think that he noticed that I was making memories with our new ornaments each year!
Maybe a couple months ago or just a couple weeks but Sean said to me, again, very casually, “I don’t think that I could wake up at 4:30 in the morning every day to be at work at 7:30 for as long as you did!”
This was another instance that stopped me in my tracks! I just was doing what I had to do! But I think what he said to me just a few days ago really took the cake!
I am not sure what prompted this conversation but he told me that he has a core memory of me placing his site word cards on the multicolor carpet that we had in our living room. We actually had it in our house as well but we lost it when my water heater started to leak!
I think that I would sacrifice the carpet again to save everything else that’s in my basement which is what it did when my water heater leaked, which prompted my brother Ray and Sean to install a new one.
I guess that I have always been a teacher! What helped was that while we lived in our second apartment, I was going to school to get my masters degree. That degree was in education and came with a Reading Specialist endorsement so when I was at class, I was learning all of new, innovated, and effective ways to teach a child to read which is what I did. That fact kind of befuddles me today, I think.
I am no longer part of the workforce and time it’s kind of irrelevant to me now. But, this unexpectedly happened yesterday:
For me, now, this signifies the end of summer! The next chapstick I use will be vanilla bean because I know that I will finish this Chapstick before October 1 which is when I start pumpkin spice…
I have such important developments and decisions in my life now!!! 😂😂😂
I realized that I did not post my September faves this month. I didn’t get my new phone until recently but I’m kind of immersed in Purple Hearts and I can’t get this song out of my head for so many reasons:
Sean swears that he does not look like that kid but I disagree! That guy has his mouth and I KNOW because he has MY mouth!
I was reminded of my favorite declaration of love that I have ever received! Now, I am 40 years old and I have heard that from guys that have been fleeting, my child first acquiring language, and my Dad, a few days before he died.,,
But I was reminded of my ultimate, favorite declaration of love yesterday and let me set the scene of what was happening yesterday:
My right contact moved in my eye and my Mom started to freak out! I removed my glasses and closed my eyes. I just slowly rubbed the top of my eyelid to kind of push on my eyeball. It definitely did not feel good at all but I have been wearing contacts since I was 12 years old. I just needed to be patient. I finally was able to get it out of the right side of my eyeball. I took it out and we put more solution in my hand to put it back in.
After I put my contacts back in and put my glasses back on, I told my Mom the story that made me laugh hysterically and smile because I love my cousinT!
I remember that it was summer time and my right contact had moved in my eye. I think we both were young women and I think Sean may have been napping but I sat on the hallway floor and used the hallway door mirror to try to locate my contact. I couldn’t do it so I asked my cousin to move my contact if she can see it so I will be able to grab it.
She agreed and sat down on the hallway floor with me. I held my eye open and I saw her shake her hands and say, “Oh Jennifer, I love you! I love you! I love you!” and then she touched my eyeball to move my contact to a place where I could grab it out of my own eye.
Thinking about it today as I write this makes me smile!!!
There is a moment each morning when my bed changes from zero gravity to completely flat. That moment is a very painful moment! I have written about it before when Sean noticed the moment my face changes when I am completely flat. That was the second or third day I had slept in the bed.
Now, since my disease has progressed, the face I make is accompanied with groans and sometimes body jerks.
So, when I awoke today, my Mom watches as my bed goes flat and my body jerks and I groan. I have told her that that is something I just have to endure before she gets me into my wheelchair. She does not enjoy watching that at all so today, just as I was almost flat she told me after I groaned that she could just smack my leg do you distract me and I’ll began to laugh!
I laughed because I remember that she told me that she would smack my face to wake it up when I was having numbness sensations on my face.
We laughed about it for a long time and I told her that her wit has perfect timing because that was really funny! I reminded her that Sean thinks that she is funny as well. It’s very understated and you don’t expect that but my Mom’s wit has absolute perfect timing because I needed to laugh today!!! Year 21 of a mess ain’t no joke!!!
My phone died on August 30. September starts a new round of daily challenges for my Word Connect game. I had missed out on some challenges once I got my phone up and running:
I thought I could get in finished in one day but then I had a snack on September 3 so I had to wait until today to handle my business!:
all of those grayed out stars were too much for me! I’m glad that they are all gone now!
This song has been randomly popping into my head each time I blow dry my hair. I have hair similar to the first singer but I remember talking about this specific song with Mr. Wright probably about 13 years ago:
So, getting a new phone because my six day old phone died has been more than a fiasco and it has taken 10 days to FINALLY get one! After I got the phone, it took my nephew telling me how to set it all up.
Once it was all set up, I noticed that I could see a little better than I normally did. But didn’t really pay attention to it. I take my contacts out so then I am able to see things on my phone. I would take a lot of screenshots and then make the picture bigger so I would be able to read it. So last night, something was off on the Settings, more specifically, the Accessibility
setting. I realized this this morning and last night before I was going to sleep (even though it was technically this morning):
The image after I click on Accessibility:
It was wonky because the type was bolded and that’s not comfortable for me to see. This is:
I think the last thing about the ‘dynamic text’ allows me to read things on Facebook and Twitter while I have my contacts AND glasses on?! They both adjust to the settings on my phone. This is really nice to see that disabled people are starting to matter too!!!
My iPhone 11 died and I Got a 12 and six days after I got it, on August 30, it died. Since then, we have talked to countless Verizon and Apple representatives! It has been a joint venture because I am having quite a difficult time seeing now. We receive so many promises of my phone being delivered and I think it was four days later, I received it and yesterday when my Mom went to activate it they would not transfer data.
We called again today and the woman from Apple was not able to get us anywhere. I told my Mom that Jonah knows more than she did because he has been working there for almost a year in Technical Support with Apple. He wasn’t even on the clock but he did this for us, anyway!!! Jonah is the real hero here!!!