Category: Uncategorized

So, I became aware of my hips a few days ago. It was not necessarily hurting, but just a little odd. But now, I have gone from awareness to a moan. It’s just a moan because it doesn’t hurt So much but something is moving. I have to be ginger with it! My Mom will get a little exasperated, and I have to remind her that I have osteoporosis and my bones are getting thin!

I don’t see my endocrinologist until May 16. I did looked it up. It’s a woman and she is a fellow, first year fellow. I told my Mom that I think I may be like a deer in headlights at this appointment so she should take point. I think. I will see her two months before I see Dr. Skatf’s replacement, because he retired as well.

I think I was aware of my hips for a few days but now I’ve started moaning and I wonder when it will turn into a groan and when it will really hurt whenever I move!

I heard this song last night while I was playing Traffic Escape!. I hadn’t heard it in a long time and I think it’s crazy how times change!!! I decided to put the clean version here:

My Mom went to get her hair colored today and then she is going to see my aunt Linda because she will be close to her house for her appointment. I was thinking that I was going to watch Me Before You:

Of course, I cried when I watched it! I took a breath, and then I searched another movie. The Upside:

And, I cried at this one as well! These two movies prove the point that “Disability is for the Rich.” I am NOT rich! I think that I just wanted to watch these movies because both of those actors in power chairs are NOT disabled and I AM and I am IN a power chair! I winced at the horse races scene in You Before Me and I groaned when Lily was eating dinner with Philip. I knew that it would be cathartic for me to see both of these movies. I’m glad I watched them but it was kind of difficult today!

I awakened this morning to the smell of my Mom making apple pie! The smell of apple pie baking is a glorious smell to wake up to!!! This is the third year that I ever smelled her making pies!

Now that I am an adult, I realize how much work she puts into those pies and it is so much!!! With my Mom being here since March 13, 2020 I have smelled smells in my house that I never would’ve thought would’ve been the case!!!

With the progression of my MS, I tell my Mom that eating is no longer easy or enjoyable! That is the truth! I think it is a little bit sad, but it’s true. But I ABSOLUTELY LOVE the smells of my Mom making food that I can no longer eat because I grew up smelling these smells!

“Go Time” had a slight change of plan this month. Instead of having two doubleheaders, one today and one on Friday, today I just got my haircut. My doctor was injured so he was out of the office today. I just ordered supplements from them instead.

I like that I was able to place all of my orders! I think I will crash tonight because I am a little tired and then I will twilight sleep on Thursday night because that “Go Time” is a bit intense to say the least!

I’m glad that all of these appointments are in the same exact building because I have a specialist appointment at 2:30 and then an appointment at 4:10 with my internist. I have already spoken to her and she ordered bloodwork for me to get done between appointments.

I am just a little bit nervous about this one! But after Friday, I can crash big time and then the next day out is April 17.

So, today is St. Patrick’s Day, and I’m rocking my shirt! I took this picture last year and my hair is shorter now, but;

I clearly remember that day, it’s when I got my state ID renewed, and I was trying too hard to handle it myself! That was a really rough day, but it got done! Today, I did nothing! I am just gearing up for my two doubleheaders next week!

Since it’s St. Patrick’s Day, I always wanted red hair when I was a child! I sent this real to my brother. If you have Facebook, you can watch it yourself:

https://www.facebook.com/share/r/Q9FGi8VcW3KiyLvQ/?mibextid=UalRPS

We watched, Darby o’Gill, and the little people because today is today!

We just watched the second half of Ben Hur. That movie gets me every time, especially because I’m an adult now! The second half is the chariot race and when Judah gets his sister from the leper colony. I bought this movie when Sean was 10. We watched it for the first time together. It’s our Easter staple! I’ve already seen it three times this year… It was made in 1959, but I absolutely love it and still think it is Epic!!! I still have two more weeks of Lent to watch it!

This song keeps popping into my head, and because I am into country music right now, I have a memory of pulling out of my carport and going over the speed bumps leaving our apartment complex as this song is playing. I was still driving with my feet then, I think:

I woke up today on a mission and I completed it with one exception. Today, I planned my entire 2024 chronic illness care plan!!! I made three of the remaining four appointment for this year.

So, my year is planned with one exception, and that exception is my virtual neurology appointment! I have been seeing the neurologist once a year for the past 23 years. I was supposed to go every six months, but as a single mother, I couldn’t pay for Specialists more than once a year!

I seem to have made due. I told my speech pathologist that I seem to be collecting doctors! I told her that after I made my first appointment with an endocrinologist. She told me that it’s a more useful collection than collecting stamps. She told me that all they do is draw blood. Well, I’m okay with that then.

So, my year is planned. I have some doctors who I see every year. And others who I see every two years. I like that this scheduling makes sense to me! It makes sense to me and I know now that I can only do one appointment a month. There are some exceptions that can’t be helped, but that is usually a difficult day! I have a couple of those days coming up on both March 20 and March 22!

Because my year is planned, that means that my van rental schedule is also planned! All of this on March 4 I didn’t get that you scheduled until April of last year for 2023. So it seems that I’m getting better at this? Maybe it’s just because my world is so small and all I think about are my doctors appointments and renting vans. I’m not mad about that. At least I can do it?!

I was completely affected by Toby Keith’s death! My Mom and I listened to Toby Keith often right after my Dad‘s death. Here are just a few of our faves:

I heard this one back in high school when I would watch CMT (Country Music Television) in the summers and then it changed over to GAC (Great American Country):

My Mom and I listened to this one a lot just after my Dad died:

I’ve only dipped my toe into country music! I listened to it in high school probably junior and senior year and I worked at Lonestar this summer after high school.

I have owned three country albums in my life! I have two Dixie Chicks albums, who are just The Chicks now, and Carrie Underwood’s first album. if I really think about it, I think I had a Shania Twain single when I was a sophomore? And I bought the Chris Gaines album (who is really Garth Brooks) used from Dearborn Music.

So, I think I am putting both feet in right now, because I constantly listen to my Country playlist on Apple Music on shuffle so I get a good mix! But I think that the universe is working with me because that new Beyoncé song?!

I’ve downloaded it on Apple Music and I have seen five different shorts of people dancing to it. One of them were two Irish, tap dancers!!! I also have received an email about country music stations not playing that song, but I really dig it! If I could dance, I would do it! I will put this here so you guys can enjoy!:

I’m also going to put the clean version here because my Mom doesn’t like the swearing: